Community Participation Group

Working with and learning from our communities to shape better care.

Our Community Participation Group (CPG) works alongside NHS colleagues to ensure the lived experiences and needs of patients, carers and communities shape how services are planned and delivered.

This has been arranged by Bristol NHS Foundation Trust and CPG brings together people with lived experience of using NHS services, including patients, carers, community leaders, and representatives from voluntary and community organisations.

Recruitment of members to the CPG was supported by the BNSSG Voluntary, Community and Social Enterprise (VCSE) Alliance, helping ensure the group reflects the diversity of our local population.

Members meet regularly to share their perspectives on how services are developed and improved. Their insight helps ensure that changes support fair access to care, more consistent experiences and smoother pathways across the whole trust.

What the group does

CPG members help shape our services by:

  • offering feedback on service proposals
  • advising on how changes may impact different groups
  • reviewing patient information to ensure it is clear and inclusive
  • making sure the voice and experiences of communities who are often underrepresented are heard and can influence decision making

The CPG acts as a critical friend, and does not make decisions on behalf of the trust.

The CPG also plays an important role in supporting our Group Clinical Strategy, which sets out our aspiration to deliver seamless, high quality, equitable, and sustainable care for all our communities. 

Who's involved?

Members include carers; volunteers; community leaders; NHS service users; and representatives from voluntary, community, and social enterprise (VCSE) organisations.

Meet our members

Our members bring a wide range of experiences and ideas. Meet some below:

Bina Shah

About Bina

Photograph of Bina Shah

Bina is a retired senior business professional with more than 20 years experience in communications and creative project work. Alongside her professional career, she has volunteered her marketing and organisational skills to support charities, social causes, and local organisations.

Community connection and lived experience

As a recent client of Penny Brohn UK, Bina brings first-hand experience of accessing support services. She is currently a trustee at Penny Brohn UK and previously served as a trustee at Quartet Community Foundation, giving her valuable insight into communities across the region.

Why they joined the CPG

"I joined the Community Participation Group because services work better when people who use them help shape them. I want to help make sure information is clear, accessible, and rooted in real experience."

What they bring to the CPG

Bina brings a thoughtful and practical approach to the Community Participation Group. Her background in communications helps her think about how information can be made clearer, more accessible and easier to understand. She also brings valuable insight from her work with charities and community organisations, helping the group better understand the needs and experiences of local people.

Kim Hicks

About Kim

Kim is recently retired and has lived in South Bristol all her life. She believes many of life's most important lessons come through lived experience and is passionate about making a positive difference to others.

Community connection and lived experience

Kim has experience as both a patient and someone supporting family members and friends using NHS services. Her experiences have motivated her to help improve services and ensure others receive the best possible care.

Why they joined the CPG

"The Community Participation Group seemed like a golden opportunity. The most important things in life to me are health and happiness. If I can help others have the best NHS healthcare they can, that will make me happy."

What they bring to the CPG

Kim brings a practical patient perspective and values clear communication. She believes in asking questions, offering constructive challenge, and thinking creatively about solutions. She is also interested in how technology can improve services while ensuring people are supported and not left behind.

Liz Kelly

About Liz

Photograph of Liz Kelly.

Liz Kelly is the managing director of Bridging the Gap Together! (BTGT!), a Community Interest Company based in Weston-super-Mare that supports and empowers individuals and families affected by autism and other neurological conditions. With many years of experience across the voluntary and community sector, Liz is passionate about helping people access the support, opportunities, and services they need to lead fulfilling lives. Her work is shaped by both professional expertise and personal experience as a parent of a young person with autism.

Community connection and lived experience

Liz's journey into advocacy and community leadership began following her son's autism diagnosis at the age of four. She became actively involved with the National Autistic Society, later serving as both a branch officer and chair of the North Somerset branch. During this time, she championed a whole-family approach to support, recognising the importance of meeting the needs of not only autistic individuals but also parents, siblings, and extended family members.

Throughout her career, Liz has worked closely with local communities, partner organisations, and public services to improve support for neurodiverse individuals and their families. Her experience has been recognised by local authorities and community groups, leading to involvement with initiatives such as the Parent Carer Forum and the Early Intervention Health Group.

Liz has also held a number of voluntary and leadership roles, including chair of Our Voice Counts, trustee of Supportive Parents (now SAY), trustee of the North Somerset LGBT+ Forum, director of Growth CIC, which focuses on men's mental health, and director of Common|Waves CIC. These roles have given her valuable insight into the diverse needs of local communities and the importance of inclusive, person-centred support.

Why they joined the CPG

"I joined the Community Participation Group because I believe that people and communities should have a genuine voice in shaping the services that affect them. I am committed to ensuring that lived experience is valued and that services are designed in ways that are inclusive, accessible, and responsive to people's needs."

What they bring to the CPG

Liz brings extensive experience in community engagement, voluntary sector leadership, and supporting neurodiverse individuals and families. She offers both professional expertise and lived experience, alongside strong relationships across community and VCSE networks. She is particularly passionate about inclusion, mental health, accessibility, and reducing barriers that prevent people from accessing the support they need.

Guided by values of fairness, empathy, and honesty, Liz is committed to helping ensure that community voices are heard and reflected in decision-making. Outside of her professional and voluntary roles, she enjoys photography and sewing, and is motivated by creating opportunities that enable people and communities to thrive.

Lorna Robertson

About Lorna

Photograph of Lorna Robertson.

Lorna has worked for Alzheimer's Society for more than 25 years in a variety of management roles, developing and advocating for services for people affected by dementia. She has a particular interest in younger people with dementia, informed by her own family experience when her mother developed dementia in her early 50s.

Community connection and lived experience

Lorna represents the VCSE Alliance across Bristol, North Somerset and South Gloucestershire and has been involved in developing integrated services with the NHS for people affected by dementia.

Why they joined the CPG

"My experience of working with people affected by dementia has shown me that good care and support is delivered when agencies, both clinical and non-clinical, work together to provide a holistic approach."

What they bring to the CPG

Lorna brings both professional and lived experience of dementia, together with more than 30 years of management experience. She is passionate about fairness, equity, compassion, and creating opportunities for people to contribute and make a difference.

Ola Olayiwola

About Ola

Ola is involved in the Community Participation Group through Bristol Autism Centre, a community-led organisation committed to improving understanding, inclusion and equality for autistic people across Bristol and surrounding areas. The organisation works to create more inclusive and autism-affirming environments where autistic people, families and communities can thrive.

Community connection and lived experience

Through Bristol Autism Centre, Ola works to improve awareness, inclusion and equality for autistic people and their families. As a member of the Community Participation Group, he has contributed to workshop sessions and discussions that bring community perspectives into conversations about healthcare services.

Why they joined the CPG

"What I have valued most is the tangible shift from traditional consultation toward meaningful collaboration and co-production."

What they bring to the CPG

Ola brings experience in community engagement, inclusion and advocacy through his work with Bristol Autism Centre. He is passionate about ensuring diverse voices are heard and represented in decisions that affect people's lives.

Pete Fox

About Pete

Photograph of Pete Fox

Pete worked in the NHS from 1980 until his retirement in 2016. During his career he worked across a range of clinical and leadership roles, including nursing, emergency care, service improvement, emergency planning and occupational health.  

Community connection and lived experience

Alongside his professional experience, Pete brings extensive lived experience as a patient, carer and advocate. Since retiring, he has supported people navigate healthcare services and has received excellent care from Southmead teams in urology, Orthopaedics, Hepatology and Dermatology. Since these experiences Pete is now a member of Southmead Patient and Carer Participation Group, supporting the Cancer Partnership, Dermatology Task and Finish Group and End-of-Life Groups. 

Why they joined the CPG

"Ten years since retiring from the NHS I think and see through the eyes of a patient, while drawing on my experiences as a nurse."

What they bring to the CPG

Pete brings experience in service improvement, leadership development, patient safety, coaching and organisational learning. He is particularly interested in communication, teamwork and helping services learn from patient experiences.

 

The impact so far

Since launching in September 2025, the CPG has supported several initiatives aiming to make services fairer, more joined up and easier to access. 

So far, this work has included:

  • providing feedback and insights from lived experience to inform the development of the Group Clinical Strategy Update 2026
  • taking part in a relationship-building event designed to strengthen connections, create a supportive environment, and develop a shared sense of purpose across the trust
  • co-designing an engagement framework for the Group Clinical Services Programme, helping to ensure future involvement opportunities are inclusive, meaningful, accessible and easy for people to take part in
  • sharing lived experience insights and feedback to help shape the development and improvement of Group Clinical Services

The involvement of people with lived experience has brought valuable insight, enthusiasm and positive energy to this work. Bringing together a diverse group of people to share their perspectives at the highest levels of decision-making represents an important and encouraging way of working. By involving people from the outset, we are helping to ensure that a wide range of voices, experiences and viewpoints influence service improvements and strategic developments from the very beginning.

Involving CPG voices at the highest levels of decision making and at the outset of any changes means we can ensure the services and care we provide reflect the needs of all our communities and the populations we serve. 

We will be sharing updates in this section as the CPG continues to grow and its impact develops.

Get involved

Please note, we are not currently recruiting new members to the Community Participation Group. However, there are other opportunities to get involved through volunteering roles including Expert by Experience opportunities across our hospitals in Bristol and Weston:

Frequently Asked Questions

What is the Community Participation Group?

The Community Participation Group is a group of patients, carers, community representatives and VCSE partners who work alongside colleagues from Bristol NHS Foundation Trust to share experiences, provide feedback and help inform service improvement. 

When was the group launched?

The Community Participation Group was launched in September 2025. 

Does the group make decisions?

No. The group acts as a critical friend, providing insight, challenge and feedback to help inform discussions and service development. It does not make decisions on behalf of the trust.

Who can join?

The group includes people with lived experience of NHS services, carers, community representatives, volunteers and people from voluntary, community and social enterprise organisations. 
We are not currently not recruiting for members. There are other ways you can get involved which you can find on: